She received platelets this morning because her level was borderline with the threshold for transfusion, so her level should now be safe to get her through the weekend. Her ANC is still very low, but that's to be expected with leukemia and the chemotherapy she's receiving.
We had a physical therapist come by yesterday to help encourage Joella to walk, but she just screamed. We'll see how she does at home and if there's a need for physical therapy. This morning, she started crawling around her bed and even acted like she was going to climb down, which really surprised me. This was a huge improvement. She was asking for "car" this morning--she wanted to go for a ride around the floor in a small car with a parent push bar. Unfortunately she's still confined to her room because of her possible respiratory infection.
Last night and this morning we've seen many more glimpses of the Joella we know. We've been playing a balloon game with her butterfly balloon. She shakes the ribbon to bounce around the butterfly and then releases it to float up to the ceiling. Then she says, "Oops!" and laughs and we do it again. She plays peek-a-boo with us and with the nurses to show her goofy side.
Last night we watched Happy Feet, and she would lift her arms and "dance" during all the music/dancing segments. For dinner she ate an entire personal pizza--maybe not the healthiest thing, but at least it wasn't Cheerios!
We're all excited to come together as a family again. Cameron, who's been enjoying a personal vacation with family members now admits, "I DO miss them!" We miss him, too.
Please pray for our family as we transition to a new "normal." Pray for wisdom for us as parents to do what's best for our kids physically, emotionally and spiritually. Pray that we would not make decisions out of worry or fear but out of trust and obedience to the Lord.
I pray that you all get to go home very soon. I'm going to miss Joella's sweet little face in the nursery every week, but her health is the most important thing. Take care of yourselves. And as always, let us know if you need anything. God bless.
ReplyDeleteHave been praying for all and have been trying to build a prayer network that is very far reaching. He says we should pray in numbers and that is being done. Our God is an awesome God He reigns from Heaven above. Your reports are inspiring as it is evident He is at work.
ReplyDeleteThat network of pray goes far and wide....know that you are in the prayer of many.
ReplyDeleteMy thoughts and prayers are with you constantly. I've seen your wonderful parental skills and wisdom so often, I can feel confident you'll know what's best now, as you all prepare to be together at home again.
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